Patient and Family Engagement in Research

Patient and Family Engagement in Research

Centers:

Clinical research agendas have long been driven by researchers and clinicians. The Center for Translational Genetics is shifting this research paradigm to bring the voice of patients and families to the forefront by including them as equal partners in all aspects of research from conception of ideas all the way through to the dissemination and implementation of results. This patient-centered approach assures that research focuses on questions that are important to patients and families.

Other populations impacted.

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