Special Populations

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Population Impact: Special Populations

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The Program for Breast Cancer in Young Women (PBCYW)

The Program for Breast Cancer in Young Women (PBCYW)

The Program for Breast Cancer in Young Women (PBCYW)

Centers:

Working in partnership with MDHHS, the Program for Breast Cancer in Young Women is working to address the unique needs of women who have received a diagnosis of early state or metastatic breast cancer before the age of 45, and their caregivers. The project focuses on recruiting and engaging stakeholders to participate in the PBCYW Advisory Council. The Advisory Council will work to increase access to services and programs for young women with breast cancer and their caregivers.

Other populations impacted.

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MI ACE Initiative

MI ACE Initiative

MI ACE Initiative

Centers:

The Michigan ACE Initiative raises awareness about the impact of Adverse Childhood Experiences (ACEs) throughout the State of Michigan. ACEs include child physical, sexual, and emotional abuse, physical and emotional neglect, and family dysfunction. ACEs can have a lasting, negative effect on health and well-being and are linked to chronic health problems, mental illness and substance abuse in adulthood. Working with diverse leaders and a network of trainers and community champions, the Michigan ACE Initiative is focused on bringing statewide awareness to ACEs and implementing projects to build a trauma-informed and resilient Michigan.

Other populations impacted.

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CONNECTED: A Youth Mental Health Initiative

CONNECTED: A Youth Mental Health Initiative

CONNECTED: A Youth Mental Health Initiative

Centers:

CONNECTED is a two-year initiative that intends to reduce anxiety, depression and suicide among young people aged 10 to 24 in underserved communities, and empowers youth to engage in meaningful change. With support from a private venture philanthropist, and in partnership with Change Matrix, Relias, Watauga Consulting and Youth MOVE National, the National Council for Behavioral Health launched this initiative to increase access to and engagement in quality, appropriate care for youth in underserved communities who experience barriers to mental health supports. Recognizing that efforts driven by and for those they intend to serve are most effective, CONNECTED engages young people with lived experience. Five organizations are piloting approaches and connecting young people in their communities to new types of mental health supports. A comprehensive evaluation, led by MPHI, will illuminate the driving factors that contribute to successful implementation of effective approaches. Lessons learned and resources will be shared nationally in support of empowering communities to enact positive change.

Other populations impacted.

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Clinical Placement Flint Pilot

Clinical Placement Flint Pilot

Clinical Placement Flint Pilot

Centers:

The Center for Nursing Workforce and Policy is the evaluator on the Flint Clinical Placement Pilot Project funded by MDHHS’ Office of Nursing Policy. The goal of the pilot project is to help meet the growing needs of nursing programs while providing nursing services, education, and outreach to the Flint community in response to the water crisis. MPHI is evaluating the pilot placements and related outreach efforts to help build the evidence base for nursing clinical placements.

Other populations impacted.

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Patient and Family Engagement in Research

Patient and Family Engagement in Research

Patient and Family Engagement in Research

Centers:

Clinical research agendas have long been driven by researchers and clinicians. The Center for Strategic Health Partnerships is shifting this research paradigm to bring the voice of patients and families to the forefront by including them as equal partners in all aspects of research from conception of ideas all the way through to the dissemination and implementation of results. This patient-centered approach assures that research focuses on questions that are important to patients and families.

Other populations impacted.

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Midwest Genetics Network

Midwest Genetics Network

Midwest Genetics Network

Centers:

This project facilitates partnerships to ensure children born with rare genetic conditions receive optimal genetic services by providing strategic directions, coordination, facilitation, education and training. Partners include families, genetic experts, health care providers, and newborn screening lab and follow-up programs. Stakeholders in IL, IN, KY, MI, MN, OH, and WI participate. MGN has built an infrastructure that links families of children who have genetic conditions to public health.

Other populations impacted.

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Inborn Errors of Metabolism Collaborative

Inborn Errors of Metabolism Collaborative

Inborn Errors of Metabolism Collaborative

Centers:

The Inborn Errors of Metabolism Collaborative (IBEMC) is a nationwide network of clinicians and researchers whose goal is to improve outcomes for people with rare genetic disorders known as Inborn Errors of Metabolism (IBEM). Over the last decade, IBEMC's network has accumulated the largest single collection of clinical information on IBEM in the world including data on more than 2,100 patients. Current work is focused on increasing racial and ethnic diversity represented by the resource.

Other populations impacted.

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Michigan Family-to-Family Health Information Center

Michigan Family-to-Family Health Information Center

Michigan Family-to-Family Health Information Center

Centers:

This project provides information, education, technical assistance, and peer support to families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. MI F2F has three primary goals: 1) promote optimal health for CYSHCN in Michigan, 2) ensure that families of CYSHCN will partner in decision-making at all levels, and 3) facilitate access to effective health delivery systems by meeting the health information and support needs of CYSHCN and their families. The project also focuses on the number of CYSHCN and families, particularly from under-represented and diverse communities, who are provided skill development opportunities, so they can partner at all levels of decision-making.

Other populations impacted.

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Contact Info

2436 Woodlake Circle
Suite 300
Okemos, MI 48864
Phone: (517) 324-8300
Fax: (517) 381-0260
Email: info@mphi.org
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