Population Impact: Special Populations

View All Populations

Clinical Placement Flint Pilot

Clinical Placement Flint Pilot

Clinical Placement Flint Pilot

Centers:

The Center for Nursing Workforce and Policy is the evaluator on the Flint Clinical Placement Pilot Project funded by MDHHS’ Office of Nursing Policy. The goal of the pilot project is to help meet the growing needs of nursing programs while providing nursing services, education, and outreach to the Flint community in response to the water crisis. MPHI is evaluating the pilot placements and related outreach efforts to help build the evidence base for nursing clinical placements.

Other populations impacted.

Click to see additional projects.

Patient and Family Engagement in Research

Patient and Family Engagement in Research

Patient and Family Engagement in Research

Centers:

Clinical research agendas have long been driven by researchers and clinicians. The Center for Translational Genetics is shifting this research paradigm to bring the voice of patients and families to the forefront by including them as equal partners in all aspects of research from conception of ideas all the way through to the dissemination and implementation of results. This patient-centered approach assures that research focuses on questions that are important to patients and families.

Other populations impacted.

Click to see additional projects.

Midwest Genetics Network

Midwest Genetics Network

Midwest Genetics Network

Centers:

This project facilitates partnerships to ensure children born with rare genetic conditions receive optimal genetic services by providing strategic directions, coordination, facilitation, education and training. Partners include families, genetic experts, health care providers, and newborn screening lab and follow-up programs. Stakeholders in IL, IN, KY, MI, MN, OH, and WI participate. MGN has built an infrastructure that links families of children who have genetic conditions to public health.

Other populations impacted.

Click to see additional projects.

Inborn Errors of Metabolism Collaborative

Inborn Errors of Metabolism Collaborative

Inborn Errors of Metabolism Collaborative

Centers:

The Inborn Errors of Metabolism Collaborative (IBEMC) is a nationwide network of clinicians and researchers whose goal is to improve outcomes for people with rare genetic disorders known as Inborn Errors of Metabolism (IBEM). Over the last decade, IBEMC's network has accumulated the largest single collection of clinical information on IBEM in the world including data on more than 2,100 patients. Current work is focused on increasing racial and ethnic diversity represented by the resource.

Other populations impacted.

Click to see additional projects.

Michigan Family-to-Family Health Information Center

Michigan Family-to-Family Health Information Center

Michigan Family-to-Family Health Information Center

Centers:

This project provides information, education, technical assistance, and peer support to families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. MI F2F has three primary goals: 1) promote optimal health for CYSHCN in Michigan, 2) ensure that families of CYSHCN will partner in decision-making at all levels, and 3) facilitate access to effective health delivery systems by meeting the health information and support needs of CYSHCN and their families. The project also focuses on the number of CYSHCN and families, particularly from under-represented and diverse communities, who are provided skill development opportunities, so they can partner at all levels of decision-making.

Other populations impacted.

Click to see additional projects.